When we got here this morning we found that Gwen has advanced to wearing clothes and being bundled up in blankets. They've turned her bed heater off. She's on 3L of O₂, down from 4L yesterday. She's moving to intermittent feeds, on for 2 hours, off for 1. All these are steps towards getting her used to what life at home would be like.
During the night they moved her IV for her lipids from her foot to her arm.
The nurse this morning could not get Gwen to settle, and chalked it up to how crazy it is here. And it is crazy. Not a minute goes by that some machine somewhere is beeping. The worst are the ventilators on Gwen's neighbors. When we first got here there were a lot of visitors. The nurse gave her a sedative, which we would prefer her not to be on, but she needs to sleep. They are talking about her having a more steady dose.
Laura's holding her right now. I got to hold her for an hour before we left last night.
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Poetry. I don't know what else to do... I miss you seven years later my love. Your birthday is always a joyful time, even if I am welli...
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Gwen was awake and looking at us for a little while. This is the first photo of her since her operation that doesn't look "scarry...
That is totally awesome news. I am going to have to go out and find her some cute outfits. Make sure to give her extra hugs and kisses from her Aunt Sarah.
ReplyDeleteCongratulations on so much progress. I know you can't wait till she is well enough to come home with you. Give both girlies a kiss from Anya and Atticus. We have been praying for them both. Yesterday morning, I think in reaction to that, Anya was checking over her doll with her doctor's kit, saying, Bitty Baby is sick this morning." She needs a bandaid to make her feel better. She then hugged and shushed her, and "nursed" her. I'm sure that Lillian will be a "little mother" as well if she isn't already!
ReplyDeleteLeah
Oh YAY!! Cute baby girl clothes!! And tonight is the big consignment sale!! I am going to go cuhRAAAzy!
ReplyDeleteIt's so good to hear such positive news. I hope you guys are taking care of yourselves - get some rest and de-stress.
ReplyDeleteI loved reading the word "home". I also love all the different ways God has answered "yes" to our prayers.
ReplyDeleteYAY! So glad you are able to hold her again, that is such great news! I'd be jumping up and down if I wasn't at work!
ReplyDeleteWe've been following all the posts about Gwenyth with much concern. All of you are in our thoughts and prayers. You are an amazing young family - and we love you!
ReplyDeletePem and Lucy Ellen Cooley